Reliability and validity of the Turkish translation of the pedsql™ 3.0 neuromuscular module for 2-to 4-year-olds in spinal muscular atrophy

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dc.authorid0000-0002-7950-2067
dc.contributor.authorKutlutürk Yıkılmaz, Seval
dc.contributor.authorTanrıverdi, Müberra
dc.contributor.authorÖktem, Sedat
dc.date.accessioned2024-06-03T05:14:42Z
dc.date.available2024-06-03T05:14:42Z
dc.date.issued2024
dc.departmentİstanbul Medipol Üniversitesi, Tıp Fakültesi, Dahili Tıp Bilimleri Bölümü, Çocuk Sağlığı ve Hastalıkları Ana Bilim Dalı
dc.description.abstractBackground The Pediatric Quality of Life Inventory (TM) (PedsQL (TM)) Neuromuscular Module (PedsQL (TM) 3.0 NM) evaluates the health-related quality of life in children who are affected by neuromuscular diseases. This study's aim is to assess the adaptation of the PedsQL (TM) T 3.0 NM Turkish version (PedsQL (TM) 3.0 NM-TR) for 2- to 4-year-olds in spinal muscular atrophy (SMA). Methods The procedure of translating the PedsQL (TM) 3.0 NM into Turkish was conducted in accordance with the translation methodology outlined by the PedsQL (TM) measurement model. The PedsQL (TM) 3.0 NM-TR was administered to 54 parents of children with SMA aged 2 to 4 years. The test-retest reliability and intraclass correlation coefficient (ICC) were measured for reliability analysis. Cronbach's a coefficient and item score correlations were calculated for internal consistency. Concurrent construct validity was evaluated by Pearson correlations between the outcomes of the PedsQL (TM) 4.0 Generic Core Scale (PedsQL (TM) 4.0 GCS) and the PedsQL (TM) 3.0 NM. Results The PedsQL (TM) 3.0 NM-TR total score shows excellent reliability. The Cronbach's a values for the PedsQL (TM) 3.0 NM ranged between 0.871 and 0.906, while those for the PedsQL (TM) 4.0 GCS ranged between 0.843 and 0.897. Test-retest ICC values for the PedsQL (TM) 3.0 NM-TR ranged between 0.812 and 0.917, and for the PedsQL (TM) 4.0 GCS ranged between 0.773 and 0.899. The relationship between the PedsQL (TM) 3.0 NM-TR and the subscores of the PedsQL (TM) 4.0 GCS demonstrated a range of correlations from excellent to fair, indicating the interplay between two scales. Conclusion This study established the PedsQL (TM) 3.0 NM-TR as reliable, valid, and feasible for use in children aged 2 to 4 years with SMA.
dc.identifier.citationKutlutürk Yıkılmaz, S., Tanrıverdi, M. ve Öktem, S. (2024). Reliability and validity of the Turkish translation of the pedsql™ 3.0 neuromuscular module for 2-to 4-year-olds in spinal muscular atrophy. Neuropediatrics, 55(3), 171-177. http://dx.doi.org/10.1055/a-2288-6383
dc.identifier.doi10.1055/a-2288-6383
dc.identifier.endpage177
dc.identifier.issn0174-304X
dc.identifier.issn1439-1899
dc.identifier.issue3
dc.identifier.pmid38490253
dc.identifier.startpage171
dc.identifier.urihttp://dx.doi.org/10.1055/a-2288-6383
dc.identifier.urihttps://hdl.handle.net/20.500.12511/12545
dc.identifier.volume55
dc.identifier.wos001198351400001en_US
dc.identifier.wosqualityQ4
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakPubMed
dc.institutionauthorÖktem, Sedat
dc.language.isoen
dc.relation.ispartofNeuropediatricsen_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanı
dc.rightsinfo:eu-repo/semantics/closedAccess
dc.subjectChild
dc.subjectTurkish
dc.subjectNeuromuscular Diseases
dc.subjectSpinal Muscular Atrophy
dc.subjectQuality Of Life
dc.titleReliability and validity of the Turkish translation of the pedsql™ 3.0 neuromuscular module for 2-to 4-year-olds in spinal muscular atrophy
dc.typeArticle

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